Empowering the Rare Disease community – anytime, anywhere.

RareEDU®, NORD’s online learning environment, empowers people living with rare diseases and their families, patient advocates and other members of the rare disease community with online education on advanced rare disease topics.

Empowering the Rare Disease community – anytime, anywhere.

RareEDU®, NORD’s online learning environment, empowers people living with rare diseases and their families, patient advocates and other members of the rare disease community with online education on advanced rare disease topics.

Rare Disease Education

RareEDU® offers self-paced learning on a range of topics, from forming a patient organization to making it research-ready to understanding your role in the drug development process. Empower your advocacy journey with knowledge from NORD!

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También disponible en español.

Rare Disease Drug Development: What Patients and Advocates Need to Know

You have the power to drive research forward. The National Organization for Rare Disorders (NORD) created this educational series for patients, caregivers and advocates to learn how to actively engage in the drug development process for their disorders. This three-part course was produced in English and Spanish in partnership with the U.S. Food and Drug Administration (FDA) and the Critical Path Institute (C-PATH).

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Introduction to Rare Diseases

NORD’s Rare Disease Education course offers students the opportunity to learn from top healthcare professionals and researchers across the NORD Rare Disease Centers of Excellence.

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RareLaunch®

RareLaunch is here to help you build and grow your nonprofit from the ground up.

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