Empowering the rare disease community — anytime, anywhere.
RareEDU® is NORD’s free online learning platform for the rare disease community and those who want to learn, advocate, and contribute to progress in rare disease. Explore self-paced education designed for people living with rare diseases and their families, patient advocates and organizations, students and trainees, and others interested in building their knowledge and skills.
Empowering the rare disease community — anytime, anywhere.
RareEDU® is NORD’s free online learning platform for the rare disease community and those who want to learn, advocate, and contribute to progress in rare disease. Explore self-paced education designed for people living with rare diseases and their families, patient advocates and organizations, students and trainees, and others interested in building their knowledge and skills.
Explore Our Courses
Build knowledge and skills across the rare disease landscape. Explore self-paced courses on rare disease fundamentals, health data and research, drug development, patient advocacy organization development, and pathways into rare disease research. Learn at your own pace and find resources that can help you put what you learn into action.
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Featured Series
También disponible en español.
From Records to Research: Making Sense of Health Data for Rare Diseases
This course builds data literacy for the rare disease community, helping patients, families, and advocates make informed decisions, engage in research, and improve care. Participants will learn how health data is collected and shared, understand EHRs and patient-generated data, explore research participation, and gain insights into data quality, privacy, and innovation.
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También disponible en español.
Rare Disease Drug Development: What Patients and Advocates Need to Know
You have the power to drive research forward. The National Organization for Rare Disorders (NORD) created this educational series for patients, caregivers and advocates to learn how to actively engage in the drug development process for their disorders. This three-part course was produced in English and Spanish in partnership with the U.S. Food and Drug Administration (FDA) and the Critical Path Institute (C-PATH).
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Introduction to Rare Diseases
NORD’s Rare Disease Education course offers students the opportunity to learn from top healthcare professionals and researchers across the NORD Rare Disease Centers of Excellence.
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RareLaunch®
RareLaunch is here to help you build and grow your nonprofit from the ground up.
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