Empowering the rare disease community — anytime, anywhere.
RareEDU® is NORD’s free online learning platform for the rare disease community and those who want to learn, advocate, and contribute to progress in rare disease. Explore self-paced education designed for people living with rare diseases and their families, patient advocates and organizations, students and trainees, and others interested in building their knowledge and skills.
Empowering the rare disease community — anytime, anywhere.
RareEDU® is NORD’s free online learning platform for the rare disease community and those who want to learn, advocate, and contribute to progress in rare disease. Explore self-paced education designed for people living with rare diseases and their families, patient advocates and organizations, students and trainees, and others interested in building their knowledge and skills.
Explore Our Courses
Build knowledge and skills across the rare disease landscape. Explore self-paced courses on rare disease fundamentals, health data and research, drug development, patient advocacy organization development, and pathways into rare disease research. Learn at your own pace and find resources that can help you put what you learn into action.
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Featured Series
Rare Research Launchpad: A Career Exploration Series in Rare Disease Research
Explore rare disease research, career paths, and the journey from discovery to patient care through cystic fibrosis and Krabbe disease. Designed for students and early-career learners, this course connects you with researchers, clinicians, and families while highlighting practical steps to enter the field.
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Introduction to Rare Diseases
NORD’s Rare Disease Education course offers students the opportunity to learn from top healthcare professionals and researchers across the NORD Rare Disease Centers of Excellence.
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También disponible en español.
Rare Disease Drug Development: What Patients and Advocates Need to Know
You have the power to drive research forward. NORD created this three-part educational series to help patients, caregivers, and advocates actively engage in the drug development process. Available in English and Spanish, the course was developed in partnership with the FDA and Critical Path Institute (C-PATH).
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RareLaunch®
RareLaunch is here to help you build and grow your nonprofit from the ground up.
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También disponible en español.
From Records to Research: Making Sense of Health Data for Rare Diseases
This course builds data literacy for the rare disease community, helping patients, families, and advocates make informed decisions, engage in research, and improve care. Learn how health data is collected and shared, explore EHRs and patient-generated data, and gain insights into research participation, data quality, privacy, and innovation.
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