Featured Series
Introduction to Rare Diseases
NORD’s Rare Disease Education course offers students the opportunity to learn from top healthcare professionals and researchers across the NORD Rare Disease Centers of Excellence.
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También disponible en español.
Rare Disease Drug Development: What Patients and Advocates Need to Know
You have the power to drive research forward. NORD created this three-part educational series to help patients, caregivers, and advocates actively engage in the drug development process. Available in English and Spanish, the course was developed in partnership with the FDA and Critical Path Institute (C-PATH).
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RareLaunch®
RareLaunch is here to help you build and grow your nonprofit from the ground up.
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También disponible en español.
From Records to Research: Making Sense of Health Data for Rare Diseases
This course builds data literacy for the rare disease community, helping patients, families, and advocates make informed decisions, engage in research, and improve care. Learn how health data is collected and shared, explore EHRs and patient-generated data, and gain insights into research participation, data quality, privacy, and innovation.
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