RareLaunch – Forming a Foundation

Through instructional videos and supplemental toolkits, you will receive an introduction to nonprofit good governance practices and dive into topics including board recruitment, fundraising, strategic planning, and social media outreach to set your nonprofit on the path to success. By the end of this course, you will have created several foundational documents required for the establishment of your nonprofit.

It is estimated that more than 50% of rare diseases don’t have any organized representation or support, which leaves patients searching for resources and connections. NORD’s RareLaunch® Forming a Foundation program provides education, training, and support for patients to start nonprofits; for those involved in nonprofits, the program also builds capacity and implements good governance practices to ensure their development is sustainable.