RareLaunch – Forming a Foundation

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About Course

Through instructional videos and supplemental toolkits, you will receive an introduction to nonprofit good governance practices and dive into topics including board recruitment, fundraising, strategic planning, and social media outreach to set your nonprofit on the path to success. By the end of this course, you will have created several foundational documents required for the establishment of your nonprofit.

It is estimated that more than 50% of rare diseases don’t have any organized representation or support, which leaves patients searching for resources and connections. NORD’s RareLaunch® Forming a Foundation program provides education, training, and support for patients to start nonprofits; for those involved in nonprofits, the program also builds capacity and implements good governance practices to ensure their development is sustainable.

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What Will You Learn?

  • Customized foundational documents available for download to support the creation of your nonprofit
  • Understand the steps and paperwork required to form a legal, tax-exempt nonprofit organization
  • Gain a set of nonprofit good governance skills to set your organization on the path to success to reach your mission

Course Content

Forming a Foundation

  • Rare Can be Everywhere: Finding Community When Your Population is Small
  • Rare Can be Everywhere – Feedback
  • Nuts & Bolts of Nonprofit Development: Understanding the Governance and Business Aspects of Your Nonprofit
  • Nuts & Bolts of Nonprofit Development – Feedback
  • The Basics of Nonprofit Formation – Summary Video
  • ABCs & 123s of Nonprofit Formation: Walking the Path with Others
  • ABCs & 123s of Nonprofit Formation: Walking the Path with Others – Feedback
  • All A-Board: How to Identify and Recruit Board Members for Your Rare Nonprofit
  • All A-Board – Feedback
  • Show me the Money: Fundraising Regardless of Size
  • Show Me the Money – Feedback
  • Getting the Word Out: Growing Your Nonprofit
  • Getting the Word Out – Feedback
  • Getting the Word Out – Summary Video
  • Representation Matters: Ensuring your Board & Work Reflect your Community
  • Representation Matters – Feedback
  • You’re a 501(c)(3), Now What? Strategic Planning for Your First Year
  • Strategic Planning for Your First Year – Feedback
  • Storytelling – The Influential Voice: Saying What You Mean for Lasting Legacy & Closing
  • Storytelling – Feedback

Course Resources

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