RareLaunch – Forming a Foundation
About Course
Through instructional videos and supplemental toolkits, you will receive an introduction to nonprofit good governance practices and dive into topics including board recruitment, fundraising, strategic planning, and social media outreach to set your nonprofit on the path to success. By the end of this course, you will have created several foundational documents required for the establishment of your nonprofit.
It is estimated that more than 50% of rare diseases don’t have any organized representation or support, which leaves patients searching for resources and connections. NORD’s RareLaunch® Forming a Foundation program provides education, training, and support for patients to start nonprofits; for those involved in nonprofits, the program also builds capacity and implements good governance practices to ensure their development is sustainable.
Course Content
Forming a Foundation
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Rare Can be Everywhere: Finding Community When Your Population is Small
40:39 -
Rare Can be Everywhere – Feedback
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Nuts & Bolts of Nonprofit Development: Understanding the Governance and Business Aspects of Your Nonprofit
45:24 -
Nuts & Bolts of Nonprofit Development – Feedback
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The Basics of Nonprofit Formation – Summary Video
05:21 -
ABCs & 123s of Nonprofit Formation: Walking the Path with Others
51:29 -
ABCs & 123s of Nonprofit Formation: Walking the Path with Others – Feedback
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All A-Board: How to Identify and Recruit Board Members for Your Rare Nonprofit
50:38 -
All A-Board – Feedback
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Show me the Money: Fundraising Regardless of Size
40:47 -
Show Me the Money – Feedback
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Getting the Word Out: Growing Your Nonprofit
40:08 -
Getting the Word Out – Feedback
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Getting the Word Out – Summary Video
05:42 -
Representation Matters: Ensuring your Board & Work Reflect your Community
35:42 -
Representation Matters – Feedback
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You’re a 501(c)(3), Now What? Strategic Planning for Your First Year
41:11 -
Strategic Planning for Your First Year – Feedback
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Storytelling – The Influential Voice: Saying What You Mean for Lasting Legacy & Closing
39:25 -
Storytelling – Feedback
Course Resources
- Finding & Connecting with Others in the Rare Community
- “Rare Can Be Everywhere” Lesson Illustration
- “Rare Can Be Everywhere” Lesson Slide Deck
- Articles of Incorporation Template
- Bylaws Template
- Conflict of Interest Policy Template
- “Nuts & Bolts” Lesson Illustration
- “Nuts & Bolts” Lesson Slide Deck
- ABCs & 123s of Nonprofit Formation Guide
- Board Officer Roles
- Board Electoral Process and Term Limits Language
- “ABCs & 123s” Lesson Illustration
- “ABCs & 123s” Lesson Slide Deck
- Building Your Board Guide
- Letter Templates for New Nonprofits for Board Members and Medical Advisors
- Board Growth Slidedeck
- Fundraising Guide for New Nonprofits
- Nonprofit Start-up Costs Guide
- Budget Template
- “Show Me the Money” Lesson Illustration
- Building Your Case – Fundraising for Your Organization Webinar
- Social Media Toolkit for Nonprofit Organizations
- Getting the Word Out Resource Links
- Basics of Nonprofit Advocacy
- “Getting the Word Out” Lesson Illustration
- “Getting the Word Out” Lesson Slide Deck
- NORD's Facebook
- NORD's Twitter
- NORD's Instagram
- NORD's YouTube
- NORD's LinkedIn
- Building a Diverse, Equitable and Inclusive Rare Disease Community
- “Representation Matters” Lesson Guide
- “Representation Matters” Lesson Illustration
- “Strategic Planning for New Nonprofits” Lesson Guide
- Business Plan Template & Example (Print Ready)
- Business Plan Template & Example (Fillable)
- Crafting a Mission Statement
- “Strategic Planning for Your First Year” Lesson Illustration
- “Strategic Planning for Your First Year” Lesson Slides
- “The Nonprofit Roadmap: Strategic Planning for Beginners” Webinar