RareLaunch – Forming a Foundation

RareLaunch – Forming a Foundation

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About Course

Through instructional videos and supplemental toolkits, you will receive an introduction to nonprofit good governance practices and dive into topics including board recruitment, fundraising, strategic planning, and social media outreach to set your nonprofit on the path to success. By the end of this course, you will have created several foundational documents required for the establishment of your nonprofit.


It is estimated that more than 50% of rare diseases don’t have any organized representation or support, which leaves patients searching for resources and connections. NORD’s RareLaunch® Forming a Foundation program provides education, training, and support for patients to start nonprofits; for those involved in nonprofits, the program also builds capacity and implements good governance practices to ensure their development is sustainable.

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Lessons

Forming a Foundation

  • Rare Can be Everywhere: Finding Community When Your Population is Small
    40:39
  • Rare Can be Everywhere – Feedback
  • Nuts & Bolts of Nonprofit Development: Understanding the Governance and Business Aspects of Your Nonprofit
    45:24
  • Nuts & Bolts of Nonprofit Development – Feedback
  • The Basics of Nonprofit Formation – Summary Video
    05:51
  • ABCs & 123s of Nonprofit Formation: Walking the Path with Others
    51:29
  • ABCs & 123s of Nonprofit Formation: Walking the Path with Others – Feedback
  • All A-Board: How to Identify and Recruit Board Members for Your Rare Nonprofit
    50:38
  • All A-Board – Feedback
  • Show me the Money: Fundraising Regardless of Size
    40:47
  • Show Me the Money – Feedback
  • Getting the Word Out: Growing Your Nonprofit
    40:08
  • Getting the Word Out – Feedback
  • Representation Matters: Ensuring your Board & Work Reflect your Community
    35:42
  • Representation Matters – Feedback
  • You’re a 501(c)(3), Now What? Strategic Planning for Your First Year
    41:11
  • Strategic Planning for Your First Year – Feedback
  • Storytelling – The Influential Voice: Saying What You Mean for Lasting Legacy & Closing
    39:25
  • Storytelling – Feedback

Lessons

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