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Nothing about Us, without Us: The Community’s Role in Recruitment and Engagement for Research and Registries

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About NORD

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 330 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

© 2023 - 2024 NORD, it's icon and RareLaunch are registered trademarks of The National Organization of Rare Disorders. NORD is a registered 501(c)(3) | All Rights Reserved

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