Featured Series
From Records to Research: Making Sense of Health Data for Rare Diseases
This course builds data literacy for the rare disease community, helping patients, families, and advocates make informed decisions, engage in research, and improve care. Participants will learn how health data is collected and shared, understand EHRs and patient-generated data, explore research participation, and gain insights into data quality, privacy, and innovation.
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También disponible en español.
Rare Disease Drug Development: What Patients and Advocates Need to Know
You have the power to drive research forward. The National Organization for Rare Disorders (NORD) created this educational series for patients, caregivers and advocates to learn how to actively engage in the drug development process for their disorders. This three-part course was produced in English and Spanish in partnership with the U.S. Food and Drug Administration (FDA) and the Critical Path Institute (C-PATH).
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Introduction to Rare Diseases
NORD’s Rare Disease Education course offers students the opportunity to learn from top healthcare professionals and researchers across the NORD Rare Disease Centers of Excellence.
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RareLaunch®
RareLaunch is here to help you build and grow your nonprofit from the ground up.
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