Tag: patient registry

RareLaunch – Research Ready

Is your nonprofit expanding your work to engage in research? Are you unsure where to start or what to do next? This course will introduce you to the basics to support your research goals in the development of treatments and better care for your rare community. Through instructional videos and supplemental toolkits, you will receive instruction and support to be prepared to collaborate with researchers and industry, build a medical advisory board, create and design a natural history study, and recruit patients. By the end of this course, you and your team will know the path to follow to reach your research goals.

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