RareLaunch® : Build & Grow your Nonprofit from the Ground Up

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RareLaunch – Forming a Foundation

Are you interested in forming a nonprofit organization for your rare community but do not know where to begin? This course will walk you through......

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RareLaunch – Research Ready

Is your nonprofit expanding your work to engage in research? Are you unsure where to start or what to do next? This course will introduce......

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RareLaunch is here to help you build and grow your nonprofit from the ground up.

In the Forming a Foundation course, you’ll get easy-to-follow videos and toolkits that guide you through key areas like board recruitment, fundraising, and strategic planning. By the end, you’ll have all the essential documents you need to officially establish your nonprofit and set it up for long-term success.

Once your nonprofit is on solid footing, the Research Ready course will prepare you to dive into the world of rare disease research. Since many rare diseases don’t yet have active research, it’s important for patient communities to be ready when those opportunities come. This course helps you understand how to support and engage in research when it begins, empowering your organization to make a real impact in the rare disease community.