Rare Disease Drug Development Toolkit

Spread the word!

Use the materials in the toolkit below to let others in the rare disease community know about this important learning opportunity!

  • Customize your own graphic. Add an image of your choice and the name of your rare disease in this graphic which can be used in a variety of ways (website pop-up, social media, newsletter) with a link out to the Series. Please note that some elements of the graphic are fixed, such as the program partner logos, and should not be edited. Available in PPT.
  • Email template: This customizable email can be sent to individuals who might benefit from taking the course. Available as a Word document.
  • Newsletter article: This customizable short article talks about the course and the deep value that patients and advocates bring to the drug development process. It can be used on a website or in printed materials. Available as a Word document.
  • Social media example templates: Here are three sample posts, including copy and art files that you can use on your social media channels. Available in Word, JPEG and MP4 files.
    • Sample post 1: Video featuring Dr. Francis Collins, former Director of the National Institutes of Health, on how to partner with the FDA on drug development.
    • Sample post 2: Infographic about the course
    • Sample post 3: Animation featuring a multiple-choice question from the course