Rare Disease Drug Development Promotional Toolkit

Help Your Patient & Caregiver Community Understand Rare Disease Drug Development

People living with rare diseases and their advocates bring valuable knowledge, experiences, and perspectives to the drug development process. Understanding how that process works — and where the rare disease community can play a role — can help them become more informed and engaged partners.

Help your community build that knowledge with NORD’s Rare Disease Drug Development Series, a free online learning series designed for patients, caregivers, and advocates.

We’ve made it easy to spread the word. Use the ready-to-share and customizable materials below to promote the series through your social media channels, emails, newsletters, website, and other communications.

 

  • Customize your own graphic. Add an image of your choice and the name of your rare disease in this graphic which can be used in a variety of ways (website pop-up, social media, newsletter) with a link out to the Series. Please note that some elements of the graphic are fixed, such as the program partner logos, and should not be edited. Available in PPT.
  • Email template: This customizable email can be sent to individuals who might benefit from taking the course. Available as a Word document.
  • Newsletter article: This customizable short article talks about the course and the deep value that patients and advocates bring to the drug development process. It can be used on a website or in printed materials. Available as a Word document.
  • Social media example templates: Here are three sample posts, including copy and art files that you can use on your social media channels. Available in Word, JPEG and MP4 files.
    • Sample post 1: Video featuring Dr. Francis Collins, former Director of the National Institutes of Health, on how to partner with the FDA on drug development.
    • Sample post 2: Infographic about the course
    • Sample post 3: Animation featuring a multiple-choice question from the course