From Records to Research Promotional Toolkit

Help Your Patient & Caregiver Community Make Sense of Health Data

Health data plays an increasingly important role in rare disease research and drug development — but understanding how that data is collected, used, and shared can be challenging.

Help patients, caregivers, advocates, and others in your community build their data literacy with From Records to Research: Making Sense of Health Data for Rare Diseases, a free online course from NORD.

We’ve made it easy to spread the word. Use the ready-to-share and customizable materials below to promote the course through your social media channels, emails, newsletters, website, and other communications.

 

  • Customize your own graphic. Add an image of your choice and the name of your rare disease or patient advocacy organization in this graphic which can be used in a variety of ways (website pop-up, social media, newsletter) with a link out to the Data Literacy course. Please note that some elements of the graphic are fixed, such as the program partner logos, and should not be edited. Available in PPT.
  • Social Media Post Copy: We have prepared language that can be customized for you to share news about this course to your social media network. Available as a PDF.
  • Email template: This customizable email can be sent to individuals who might benefit from taking the course. Available as a Word document.
  • Newsletter Article: This customizable short article talks about the course and the deep value it offers to patients and caregivers. It can be used on a website or in printed materials. Available as a Word document.
  • Flyer: This flyer offers a brief overview of the course and can be shared with your network. Available as a PDF.