Rare Disease Data Literacy Course Toolkit

Spread the word!

Whether you are a patient, caregiver, or member of a patient advocacy organization, use the materials in the toolkit
below to let others in the rare disease community know about this important learning opportunity.

  • Customize your own graphic. Add an image of your choice and the name of your rare disease or patient advocacy organization in this graphic which can be used in a variety of ways (website pop-up, social media, newsletter) with a link out to the Data Literacy course. Please note that some elements of the graphic are fixed, such as the program partner logos, and should not be edited. Available in PPT.
  • Social Media Post Copy: We have prepared language that can be customized for you to share news about this course to your social media network. Available as a PDF.
  • Email template: This customizable email can be sent to individuals who might benefit from taking the course. Available as a Word document.
  • Newsletter Article: This customizable short article talks about the course and the deep value it offers to patients and caregivers. It can be used on a website or in printed materials. Available as a Word document.
  • Flyer: This flyer offers a brief overview of the course and can be shared with your network. Available as a PDF.